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Resources for Families Facing a Difficult Diagnosis Print E-mail
Written by Kristen West McGuire   
When chronic medical problems are first diagnosed, the family’s pain can be overwhelming. Parents must navigate immediate medical treatment options and  financial considerations. Time and logistics can morph into enemies, as families juggle the needs of the patient amid work and regular household duties.

It may not be possible to truly understand someone else’s experience. When seeking to offer help, be receptive to their stated needs and guard their privacy.

 

Try to treat the child and his or her family as normally as possible. When a family is exhausted by the treatment regimen and tired of incessant questions, they cherish the small, normal routines of life that are augmented by the kindness of others.

 

No matter what the prognosis may be, your prayers are golden to these families. Be generous with them!

 

CaringBridge® connects family and friends during a critical illness, treatment or recovery. A CaringBridge website is personal, private and available 24/7. It eases the burden of keeping family and friends informed, and allows distant loved ones’  to send messages of support.

Disaboom helps persons with disabilities to network, share experiences, find correct information, increase community sensitivity to their challenges, and expand the options for all persons to find meaning and support in their lives.

Be Not Afraid is an online outreach to parents who have received a poor or difficult prenatal diagnosis.

Wheelie Catholic regularly serves up thoughtful posts on this blog about life with disabilities.
 
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